Archive for 2020
Spotlight Edition on FCS
Read the Rare Revolution Spotlight Edition on Familial Chylomicronaemia Syndrome, published to celebrate FCS Awareness Day.
Read MoreFCS Awareness Day 2021
Take the FCS 10g Fat Challenge!
Read MoreVirtual meeting
Tuesday October 20th, 7pm-8.30pm
Meet Dr Charlotte Dawson, consultant in metabolic medicine, Queen Elizabeth Hospital, Birmingham.
Chicken and Sweet Corn Noodle Soup
Tasty soup that’s easy to make.
Read MoreKrish
I was diagnosed at birth with hypertriglyceridaemia after the newborn heel-prick test picked up on “cream coloured” blood. My mum would later tell me that she had been devastated by this news and had been told at the time by doctors that it would be very unlikely I would live past childhood.
Read MorePositive decision on Volanesorsen from NICE
NICE have issued a positive Final Evaluation Document (FED) for Volanesorsen for the treatment of FCS for routine care on the NHS in England. “Volanesorsen is recommended as an option for treating familial chylomicronaemia syndrome in adults with genetically confirmed familial chylomicronaemia syndrome who are at high risk of pancreatitis, and when response to diet…
Read MoreCaldo Verde with Chicken (Portuguese Cabbage Soup)
A main course soup based on Portuguese Caldo Verde.
Read MoreAsparagus Soup
Tasty soup that can also be served chilled.
Read MorePappardelle with Vongole
Tasty pasta with tuna and clams
Read MoreQuick prawn soup
Quick and easy prawn soup.
Read More