Posts by Jill
Familial chylomicronemia syndrome: An expert clinical review from the National Lipid Association
Journal of Clinical Lipidology
Read MoreReport from our February meeting
We had a wonderful time in Birmingham when patients, parents, and carers spent time meeting each other, with lots of learning from all the experts around us. Read our report.
Read MoreIfan
In February 2025, we welcomed our second born son, Ifan. Unfortunately, Ifan’s birth was not straightforward, and we stayed in hospital for a few days afterwards while he was having frequent blood tests to check his blood sugars and his bilirubin levels. At the time, we yearned to go home, but now, we wouldn’t change…
Read MoreEvent for patients, parents, and their carers
Join us at the wonderful Grand Hotel in Birmingham 27/28 February 2026.
– meet others from our FCS community,
– learn more about the condition,
– discuss strategies for managing it,
– hear about possibilities for the future.
FCS Awareness Day 2025
Learn more about the FCS 10g Fat Challenge
Read MoreHelga
Despite having a long history of extremely high triglycerides I was only diagnosed after a severe pancreatic attack at the age of 48. I knew a bit about what a triglyceride was , but I’d never heard of FCS. Unfortunately neither had my GP! My pancreas has been permanently damaged and I have to take…
Read MoreValidation of the familial chylomicronaemia syndrome (FCS) score in an ethnically diverse cohort from UK FCS registry: Implications for diagnosis and differentiation from multifactorial chylomicronaemia syndrome (MCS)
Atherosclerosis
Read MoreCurrent Dietary Practice in the Management of Adults with Familial Chylomicronaemia Syndrome
Complete Nutrition
Read MoreRare Disease Day 2025
Rare Disease Day 2025 is Friday 28 February. Add your support to everyone who is affected by a rare disease. And meet our ultra-rare zebra!
Read MoreFCS Awareness Day 2024
Learn more about the FCS 10g Fat Challenge
Read More