Action FCS is the UK charity for people affected by Familial Chylomicronaemia Syndrome (FCS)

FCS is an ultra-rare genetic condition.  People with FCS can't eat fat as they don't have the enzyme which breaks it down, or what enzyme they have doesn't work properly.

Share this page
Don't miss!

FCS Awareness Day

Take the FCS 10g Fat Challenge
Friday 6th November

Get support from your community

The Facts about FCS

Learn more about FCS and its diagnosis

Symptoms of FCS

Learn more about the symptoms of FCS

Medications for FCS

Learn how FCS is treated

Get involved


No-fat hash browns

This recipe uses a mixture of potato and sweet potato.

View recipe

News from Action FCS

Keep up to date with the latest news

In partnership with the rare disease community

rare disease uk

On our social channels

Jill Prawer founded the LPLD Alliance, now called @ActionFCS in 2015 with three other trustees. Three years before, she had set up a community on RareConnect, creating the first opportunity for patients to connect with each other across the world.


Dave and Pat Wade have been married for over 40 years. Pat is the treasurer for the charity @ActionFCS She was diagnosed with familial chylomicronaemia syndrome (FCS) in her late teens. Dave talks to us about how they deal with Pat’s condition as a couple.

Load more