Action FCS is the UK charity for people affected by Familial Chylomicronaemia Syndrome (FCS)

FCS is an ultra-rare genetic condition.  People with FCS can't eat fat as they don't have the enzyme which breaks it down, or what enzyme they have doesn't work properly.

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Take the FCS 10g Challenge

It’s time for our annual FCS 10g Challenge to raise awareness of FCS. Can you take the challenge?

Get support from your community

The Facts about FCS

Learn more about FCS and its diagnosis

Symptoms of FCS

Learn more about the symptoms of FCS

Medications for FCS

Learn how FCS is treated

Get involved

Recipes

Pappardelle with Vongole

Tasty pasta with tuna and clams

View recipe

News from Action FCS

Keep up to date with the latest news

In partnership with the rare disease community

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On our social channels

For those affected by FCS the #fcs10gfatchallenge is a relentless reality. Eating out a nightmare, and the looming threat of pain/pancreatitis a constant companion. https://www.actionfcs.org/news/fcs-awareness-day-2/ @heartukcharity @GeneticAll_UK @GutsCharityUK @manchester_cv @livingwithfcs @findacure

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