Action FCS is the UK charity for people affected by Familial Chylomicronaemia Syndrome (FCS)

About FCS

FCS is an ultra-rare genetic condition. People with FCS can't eat fat as they don't have the enzyme which breaks it down, or what enzyme they have doesn't work properly.

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Recipes

Noodle stir ‘fry’ with ginger

With turkey breast and cooked without fat.

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News from Action FCS

We’ve joined the European FH Patients Network!

6 February 2023

Video: FCS Information Session

6 October 2022

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Action FCS @ActionFCS·

2 Mar 1631227518194786305

Congrats again to Fiza for achievement in the Student Voice Prize. Read the essay here https://www.actionfcs.org/news/student-voice-prize/ @quilomicronemi1 @livingwithfcs @heartukcharity @GeneticAll_UK @RaremindsUK @RareBeacon @manchester_cv @lipiddoc @RDStudentVoice @fhpatienteurope @eurordis @MikeWM

Reply on Twitter 1631227518194786305 Retweet on Twitter 16312275181947863052 Like on Twitter 16312275181947863054 Twitter 1631227518194786305

Action FCS @ActionFCS·

2 Mar 1631219746485022721

Congratulations to Fiza, and thanks for her commitment to the FCS community! @RareBeacon @livingwithfcs @GeneticAll_UK @RDStudentVoice @lipiddoc @manchester_cv @fhpatienteurope @eurordis @heartukcharity

Reply on Twitter 1631219746485022721 Retweet on Twitter 16312197464850227211 Like on Twitter 16312197464850227213 Twitter 1631219746485022721

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Action FCS is the UK charity for people affected by Familial Chylomicronaemia Syndrome (FCS)

Rare Disease Day

Get support from your community

The Facts about FCS

Symptoms of FCS

Medications for FCS

Get involved

Recipes

Noodle stir ‘fry’ with ginger

News from Action FCS

New role for our Chair

We’ve joined the European FH Patients Network!

Video: FCS Information Session

Spotlight Edition on FCS

Student Voice Prize

Keep up to date with the latest news

In partnership with the rare disease community

On our social channels

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Acton FCS, formerly LPLD Alliance, is a Charity registered in England and Wales. Charity Number 1165873

07517 752168

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