Action FCS is the UK charity for people affected by Familial Chylomicronaemia Syndrome (FCS)

FCS is an ultra-rare genetic condition.  People with FCS can't eat fat as they don't have the enzyme which breaks it down, or what enzyme they have doesn't work properly.

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FCS in Children: Webinar

Watch our webinar FCS in Children
Recorded on Wednesday 26th April 2023

Join us to hear our four speakers to learn more about managing FCS in childhood.

Get support from your community

The Facts about FCS

Learn more about FCS and its diagnosis

Symptoms of FCS

Learn more about the symptoms of FCS

Medications for FCS

Learn how FCS is treated

Get involved


Sage Chicken Breast

Delicious, and cooked without fat.

View recipe

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In partnership with the rare disease community

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