Action FCS is the UK charity for people affected by Familial Chylomicronaemia Syndrome (FCS)

FCS is an ultra-rare genetic condition.  People with FCS can't eat fat as they don't have the enzyme which breaks it down, or what enzyme they have doesn't work properly.

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FCS Awareness Day 2021

Take the FCS 10g Fat Challenge!

Get support from your community

The Facts about FCS

Learn more about FCS and its diagnosis

Symptoms of FCS

Learn more about the symptoms of FCS

Medications for FCS

Learn how FCS is treated

Get involved


Meatless Cobbler

A recipe using soya chunks with fat-free scones.

View recipe

News from Action FCS

Keep up to date with the latest news

In partnership with the rare disease community

rare disease uk

On our social channels

Looking forward to next Wed 6-8 AM @NYUDocs #DoctorRadio @SIRIUSXM for the full 2 hrs with my friend & colleague Dr Fred Feit discussing lipids, cholesterol #knowfh #findfh please share @TheFHFoundation @fhpatienteurope @NYUCVDPrevent @livingwithfcs @ActionFCS @foundationofnla

Jill Prawer founded the LPLD Alliance, now called @ActionFCS in 2015 with three other trustees. Three years before, she had set up a community on RareConnect, creating the first opportunity for patients to connect with each other across the world.


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