Action FCS is the UK charity for people affected by Familial Chylomicronaemia Syndrome (FCS)

FCS is an ultra-rare genetic condition.  People with FCS can't eat fat as they don't have the enzyme which breaks it down, or what enzyme they have doesn't work properly.

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Rare Disease Day

Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers

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The Facts about FCS

Learn more about FCS and its diagnosis

Symptoms of FCS

Learn more about the symptoms of FCS

Medications for FCS

Learn how FCS is treated

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Noodle stir ‘fry’ with ginger

With turkey breast and cooked without fat.

View recipe

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In partnership with the rare disease community

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Congrats again to Fiza for achievement in the Student Voice Prize. Read the essay here @quilomicronemi1 @livingwithfcs @heartukcharity @GeneticAll_UK @RaremindsUK @RareBeacon @manchester_cv @lipiddoc @RDStudentVoice @fhpatienteurope @eurordis @MikeWM

Congratulations to Fiza, and thanks for her commitment to the FCS community! @RareBeacon @livingwithfcs @GeneticAll_UK @RDStudentVoice @lipiddoc @manchester_cv @fhpatienteurope @eurordis @heartukcharity

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