Action FCS is the UK charity for people affected by Familial Chylomicronaemia Syndrome (FCS)

FCS is an ultra-rare genetic condition.  People with FCS can't eat fat as they don't have the enzyme which breaks it down, or what enzyme they have doesn't work properly.

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FCS Awareness Day 2022

Friday 4th November 2022

Get support from your community

The Facts about FCS

Learn more about FCS and its diagnosis

Symptoms of FCS

Learn more about the symptoms of FCS

Medications for FCS

Learn how FCS is treated

Get involved


Lentil, barley, and butter bean stew with chicken

Full of protein from lentils, chicken and butter beans.

View recipe

News from Action FCS

Keep up to date with the latest news

In partnership with the rare disease community

rare disease uk

On our social channels

It was great for us to attend this event. We made many great connections and some new friends of FCS. @FHpatientEurope @heartukcharity @manchester_cv @RareBeacon @GeneticAll_UK @livingwithfcs @RareConnect @rarediseaseuk #actionfcs #WorldDiabetesDay

Homeward bound. Thanks to everyone at #fheuropelisbon22 for your welcome, and for your support of and commitment to the FCS community ⁦@fhpatienteurope⁩ ⁦@heartukcharity⁩ ⁦@RareConnect⁩ ⁦@eurordis⁩ ⁦@GeneticAll_UK⁩ ⁦@heartukcharity⁩ #actionfcs

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