Action FCS is the UK charity for people affected by Familial Chylomicronaemia Syndrome (FCS)

FCS is an ultra-rare genetic condition.  People with FCS can't eat fat as they don't have the enzyme which breaks it down, or what enzyme they have doesn't work properly.

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FCS Awareness Day 2024

Learn more about the FCS 10g Fat Challenge

Get support from your community

The Facts about FCS

Learn more about FCS and its diagnosis

Symptoms of FCS

Learn more about the symptoms of FCS

Medications for FCS

Learn how FCS is treated

Get involved

Recipes

Kedgeree

A recipe that can use pre-cooked rice.

View recipe

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In partnership with the rare disease community

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