FCS is an ultra-rare genetic condition. People with FCS can't eat fat as they don't have the enzyme which breaks it down, or what enzyme they have doesn't work properly.
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Event for patients, parents, and their carers
Join us at the wonderful Grand Hotel in Birmingham 27/28 February 2026.
– meet others from our FCS community,
– learn more about the condition,
– discuss strategies for managing it,
– hear about possibilities for the future.
Get support from your community
Learn more about FCS and its diagnosis
Learn more about the symptoms of FCS
Learn how FCS is treated
Get involved
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In partnership with the rare disease community
