Catherine

I was born in 1967 at the Woolwich Hospital for Mothers and Babies. Shortly after my birth, I became seriously ill and it was clear that all was by no means well. The doctors at my local hospital were unable to diagnose the problem and my condition was deteriorating fast.

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Marc

I was born in 1949 in Jonquière a city of Saguenay-Lac St-Jean that is a north east region of Québec province. As a newborn, because of FCS, I’ve been sent in emergency by plane to Montreal at Hôpital Sainte-Justine (children’s hospital). At that time the diagnosis was much more difficult than actually.

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Waylivra /Volanesorsen licenced in Europe by EMA

In February 2019 the European Medicines Agency  licenced Waylivra / Volanesorsen as “an adjunct to diet in adult patients with genetically confirmed familial chylomicronaemia syndrome (FCS) and at high risk for pancreatitis, in whom response to diet and triglyceride lowering therapy has been inadequate”. You can read more about the EMA’s decision below. Read here…

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