We try to keep abreast of the latest news and information relevant to people interested in FCS.  Please tell us about any developments we have missed by contacting us

Video: FCS Information Session

We were happy to host Fiza Javed who gave us a wide-ranging presentation on FCS. Fiza covers many aspects of FCS including diagnostics, understanding lipids, and previously studied and current medications and takes the time to explain the medical terms which can often be so confusing.

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Spotlight Edition on FCS

Read the Rare Revolution Spotlight Edition on Familial Chylomicronaemia Syndrome, published to celebrate FCS Awareness Day.

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Positive decision on Volanesorsen from NICE

NICE have issued a positive Final Evaluation Document (FED) for Volanesorsen for the treatment of FCS for…

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We’ve changed our name!

  We’ve been talking about this for a long time now, so we’re really pleased to have…

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With the developing corona-virus pandemic, patients with FCS may be wondering about their well-being. In line with…

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Glybera gets a second chance

Watch two videos the first is about renewed hopes for Glybera. ┬áThe second is the story of…

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