We were happy to host Fiza Javed who gave us a wide-ranging presentation on FCS. Fiza covers many aspects of FCS including diagnostics, understanding lipids, and previously studied and current medications and takes the time to explain the medical terms which can often be so confusing.

Read the Rare Revolution Spotlight Edition on Familial Chylomicronaemia Syndrome, published to celebrate FCS Awareness Day.

NICE have issued a positive Final Evaluation Document (FED) for Volanesorsen for the treatment of FCS for…

  We’ve been talking about this for a long time now, so we’re really pleased to have…

With the developing corona-virus pandemic, patients with FCS may be wondering about their well-being. In line with…

Watch two videos the first is about renewed hopes for Glybera.  The second is the story of…