Archive for February 2023
New role for our Chair
We’re delighted to announce that our Chair, Jill Prawer, will be joining FH Patients Europe as Rare Disease Project Manager on Rare Disease Day 2023! In her role Jill will be responsible for patient advocacy and patient support projects focusing on rare familial lipid conditions – HoFH and FCS. “I’m really excited to be working…
Read MoreRare Disease Day
Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers
Read MoreFCS/FH Europe webinar available now
In the first collaboration between Action FCS and FH Europe we brought together different perspectives from medical and patient experts who shared their experiences and knowledge of FCS.
Read MoreWe’ve joined the European FH Patients Network!
We’re delighted to announce that we have joined the European FH Patients Network. The European FH Patient Network is a charity that is actively working to improve Europe-wide awareness, understanding, and access to diagnosis and treatment of inherited lipid conditions, (specifically FH, HoFH, Lp(a), FCS), so that all those impacted receive optimal treatment and support,…
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