We’ve changed our name!

  We’ve been talking about this for a long time now, so we’re really pleased to have finally changed our name.  Previously known as LPLD Alliance we hope our new name captures the essence both of managing the condition on a daily basis, and the work of the charity on behalf of people affected by…

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Waylivra /Volanesorsen licenced in Europe by EMA

In February 2019 the European Medicines Agency  licenced Waylivra / Volanesorsen as “an adjunct to diet in adult patients with genetically confirmed familial chylomicronaemia syndrome (FCS) and at high risk for pancreatitis, in whom response to diet and triglyceride lowering therapy has been inadequate”. You can read more about the EMA’s decision below. Read here…

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Rax

Throughout my childhood, my diet was very strictly monitored and managed by my ultra-vigilant mother who succeeded in cooking the most delicious meals for us without a trace of oil or fat. Back in the early 80’s food labeling was unsophisticated and poorly regulated, which resulted in endless hours spent in supermarket aisles trying to figure out the true fat content of products that were often placed back on the shelf out of fear of being incompatible with our diets.

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