Living on Max 20g fat per day

Held Thursday 19th January 2023


In the first collaboration between Action FCS and FH Europe we brought together different perspectives from medical and patient experts who shared their experiences and knowledge of FCS.

Jill Prawer and Jane Hellings shared their personal experiences of living with the condition.  Jane shared some of the difficulties she's faced, particularly around pregnancy, and Jill talked about the practical impact of eating less than 20g fat per day.

Dr Charlotte Dawson explained FCS from the medical perspective, while Professor Hegele explained how FCS is passed down through generations. Professor Catapano then talked about possible therapies for the future and we finished the session off with questions from the audience.


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