We're delighted to announce that our Chair, Jill Prawer, will be joining FH Patients Europe as Rare Disease Project Manager on Rare Disease Day 2023! In her role Jill will be responsible for patient advocacy and patient support projects focusing on rare familial lipid conditions – HoFH and FCS.
“I’m really excited to be working with the team at FH Europe, specifically focusing on the rare lipid conditions FCS and FoFH. I know first-hand the issues and challenges facing those with a rare disease, with and without a diagnosis. I'm looking forward to helping to improve support for patients with FCS and HoFH, and education for everyone involved with them." - Jill Prawer
Magdalena Daccord, FH Europe’s Chief Executive says "I am incredibly pleased to welcome Jill to our Team. Her very personal experience and great personality will be an asset to our rare diseases’ patients’ community!” –
Jill will continue to be Chair of Action FCS, and anticipates that the roles will be complimentary.