We try to keep abreast of the latest news and information relevant to people interested in FCS.  Please tell us about any developments we have missed by contacting us

New routes to clinical diagnosis of FCS

This paper explores the way in which clinical results can separate patients with FCS from patients with…

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European Athersclerosis Society

Rare dyslipidaemias, from phenotype to genotype to management: a European Atherosclerosis Society task force consensus…

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Waylivra /Volanesorsen licenced in Europe by EMA

In February 2019 the European Medicines Agency  licenced Waylivra / Volanesorsen as “an adjunct to diet in…

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Article: Guidelines to diagnose FCS

Published in Athersclerosis, and available online in June 2018:  Identification and diagnosis of patients with familial chylomicronemia…

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Genetic testing to be centralised

This is seen as a positive development as it removes the potential reluctance to give a referral because…

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Article: Dietary recommendations

Published in the Journal of Clinical Lipidology (April 2018) this article ‘Familial chylomicronemia syndrome: Bringing to life…

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