Event for patients, parents, and their carers

Join us at the wonderful Grand Hotel in Birmingham 27/28 February 2026.
– meet others from our FCS community,
– learn more about the condition,
– discuss strategies for managing it,
– hear about possibilities for the future.

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Helga

Despite having a long history of extremely high triglycerides I  was only diagnosed after a severe pancreatic attack at the age of 48. I knew a bit about what a triglyceride was , but I’d never heard of FCS.  Unfortunately neither had my GP! My pancreas has been permanently damaged and I have to take…

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Rare Disease Day 2025

Rare Disease Day 2025 is Friday 28 February. Add your support to everyone who is affected by a rare disease. And meet our ultra-rare zebra!

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