Free event for patients, parents, and their carers
Friday 27 February - Saturday 28 February 2026
Grand Hotel, Birmingham
We're delighted to have secured funding to host our first event for people and parents of children with FCS and their carers - the people who support them most in managing FCS.
Places will be allocated on a first-come, first-served basis with preference given to those resident in the UK. Thanks to the generosity of Sobi and Arrowhead Phamaceuticals, the event will be fully funded and the event package includes:
- Accommodation on Friday 27 February at the Grand Hotel, 1 Church St, Birmingham B3 2FE, if required
- FCS-friendly dinner on Friday 27 February (alcoholic drinks not included)
- FCS-friendly breakfast on 28 February
- Attendance to the patient/carer day on 28 February which will start at 9.30am.
- FCS-friendly lunch and refreshments throughout the day
- Each person attending can claim up to £100 toward their travel expenses; this will be reimbursed after the event, provided receipts and a claim form are submitted before 31 March 2026
- Virtual attendance for those unable to attend or who live outside of the UK.
THE GRAND HOTEL BIRMINGHAM, PAST AND PRESENT
In 1875, Isaac Horton and his architect, Thomson Plevins, began work on a 100-bedroom hotel on the corner of Colmore Row and Church Street: The Grand Hotel Birmingham opened some four years later, on 1 February 1879. Further additions and extensions were made over the following 15 years, chief among them the Louis XIV-style ballroom.
For the whole of the 20th century, The Grand Hotel was a Birmingham landmark, and for the best part of that time a byword for luxury and civic pride. Since 2002, the hotel has been closed but now – following a £45 million restoration and refurbishment of the spectacular, Grade 2* listed building – The Grand Hotel re-opened in May 2021.
Venue Details
Address: 1 Church Street, Birmingham B3 2FE
Telephone: 0121 827 9600
Getting to the Grand Hotel
Nearest Train Stations: Snow Hill, 150m / 500ft / 2 minutes by foot
New Street, 450m . 15000ft / 6 minutes taxi / 6 minutes by foot
Nearest Car Parking: B4, Weaman Street, 4 minutes
Birmingham Airport: 14 miles / 20 minutes taxi / 20 minutes train (to New Street)
Map and transport details taken from the Grand Hotel.



